Links

For Parents

Department on Disabilities for City of Los Angeles:
The Department on Disability and the Commission on Disability work together to respond to the needs an concerns of citizens of the City of Los Angeles. The commission advocates for people with disabilities.

Alliance for Technology Access
The Alliance for Technology Access (ATA) is a network of community-based Resource Centers, Developers, Vendors and Associates dedicated to providing information and support services to children and adults with disabilities.

Families of Spinal Muscular Atrophy
Families of Spinal Muscular Atrophy web site is a comprehensive, on-line information and resource center.

The Daisy Chain
Dedicated to connecting you with family resources, support services, activities, and events in your local area. Their goal is to connect you with family resources, support services, activities and events in your local area.

Rifton Equipment
Provides quality walkers, standers, chairs, tricycles, bath chairs and toileting systems that can be adjusted to meet the needs of as many as possible. Adaptive equipment which helps normal positioning can open a whole new world for children and adults.

Family Center on Technology and Disability
The Family Center is a resource designed to support organizations and programs that work with families of children and youth with disabilities. We offer a range of information and services on the subject of assisted technologies.

Internet Resources for Special Children
The IRSC is a non-profit web site, which has been providing parents, educators, medical professionals, and caregivers with information regarding children with disabilities. Contains links to a number of websites.

National Dissemination Center for Childern with Disabilities
NICHCY is the national information and referral center that provides information on disabilities and disability-related issues for families, educators, and other professionals.

Government

Department of Justice – Children with Disabilities
The Children With Disabilities Web site offers families, service providers, and other interested individuals information about advocacy, education, employment, health, housing, recreation, technical assistance, and transportation.

Department of Developmental Services
Provides services and supports to children and adults with developmental disabilities. These disabilities include mental retardation, cerebral palsy, epilepsy, autism and related conditions.

ADA/The Access Board
Effective 1992, the American with Disabilities Act (ADA), a federal law, prohibits disability-based discrimination by states, local governments, and private entities.

Consumer Product Safety Commission
The Consumer Product Safety Commission (CPSC) is an independent agency of the federal government whose charter is to inform the public of unreasonable risks associated with consumer products.The CPSC has developed safety standards for playgrounds.

Agency for Health Care Policy and Research
AHRQ is the Agency for Healthcare Research and Quality the Nation’s lead Federal agency for research on health care quality, costs, outcomes, and patient safety.

Joint Commission on Accreditation of Healthcare Organizations
The Joint Commission evaluates and accredits nearly 15,000 health care organizations and programs in the United States. An independent, not-for-profit organization,

National Committee for Quality Assurance
The National Committee for Quality Assurance is a private, 501(c)(3) not-for-profit organization dedicated to improving health care quality.

National Conference of State Legislatures
The nation’s most respected bipartisan organization providing states support, ideas, connections and a strong voice on Capitol Hill.

National Conference of State Legislatures – Health Programs
NCSL’s Denver office is the base for the NCSL Health Program. NCSL’s Washington, D.C. office is home to The Forum for State Health Policy Leadership; D.C. also is where federal health policy lobbying activities take place.

National Institutes of Health
The National Institutes of Health (NIH), a part of the U.S. Department of Health and Human Services, is the primary Federal agency for conducting and supporting medical research.

National Library of Medicine
Home Page

National Library of Medicine – Databases
Database Page

General

Cerebral Palsy Guide
Vital guidance and assistance to parents of a child with cerebral palsy… a helping hand on your journey.

Miracle for Madison
Inspired by beautiful Madison Rose, families in Ohio joined forces to support research for Spinal Muscular Atrophy and to develop a clinic at the Ohio State University dedicated to SMA.

Westside Regional Center
Westside Regional Center offers assessment, case management and support to persons with developmental disabilities. It is Westside Regional Center’s mission to empower people with developmental disabilities and their families.

Charity Navigator – Guiding Intelligent Giving
Charity Navigator evaluates the financial health of Americas largest charities for America’s donors free of cost.

Special Child – An Online Magazine
An online publication dedicated to parents of children with special needs.

American Medical Associations
The American Medical Associations extensive home page has specific sections on advocacy and policy for managed care. The information is geared for citizens wanting to learn more about the political side of managed care, including political initiative.

Family Village
The Family Village is a global community that integrates information, resources, and communication opportunities on the Internet for persons with mental retardation and other disabilities, for their families, and for those provide them services.

National Organization for Rare Disorders
The National Organization for Rare Disorders home page offers services to help inform families, physicians and friends about rare diseases and their current treatments. The site offers an acclaimed newsletter, the Orphan Disease Update.

National Parent Network on Disabilities
The National Parent Network on Disabilities home page provides its members with the most up-to-date information on the activities of all three branches of government that impact individuals with disabilities and their families.

National Parent-to-Parent Support Information System
The National Parent-to-Parent Support Information System is a nonprofit organization established to support, strengthen, and empower families through one-to-one parent contacts. The web site offers assistance in linking families nationally.

Physicians Who Care
The Physicians Who Care home page includes current news articles about Medicare, HMOs, managed care and Medicare reform. In addition, the site offers a full-text medical journal search database. The web site is intended not only for physicians.

The Arc
The Arc promotes and protects the human rights of people with intellectual and developmental disabilities and actively supports their full inclusion and participation in the community throughout their lifetimes.

weSPARK
A sister organization of ours based in Los Angeles that offers free support groups, integrative therapies, and creative and educational workshops to all those whose lives have been affected by cancer.

Legal & Legislative

Findlaw.com
Findlaw.com Findlaw provides a collection of case law as well as legal citations on a wide array of topics. The Findlaw topic page holds dozens of links to health law resources on the Internet.

Health Hippo
Health Hippo is a collection of policy and regulatory materials related to health care. It contains a wide array of resources on health topics, including federal sites and news articles.

The National Health Law Program (NHeLP)
The National Health Law Program (NHeLP) is a national public interest law firm that seeks to improve the health care of America’s working and unemployed poor, minorities, the elderly, and people with disabilities.

Consumer & Legal Advocates

Bazelon Center for Mental Health Law
Bazelon Center for Mental Health Law is a leading national legal advocate for people with mental illness and mental retardation. The web site includes information and resources on reform of public systems to serve adults, children and older people.

Center for Budget and Policy Priorities
The Center for Budget and Policy Priorities home page contains a list of publications about children’s access to healthcare and Medicaid.

Consumer Union
Consumer Union’s site provides information and educational materials developed by Consumers Union’s advocacy offices on a variety of consumer issues, including access to health care, insurance reform, long-term care, and managed care and health insurance.

Wrightslaw
At Wrightslaw, you’ll find articles, cases, newsletter, and other essential information about special education law and advocacy. Wrightslaw is a key reference for parents, attorneys, educators, and advocates. Parents, educators, experts, and attorney’s.

Recreation

Pacer Center
Pacer Center provides information on special education issues affecting children with disabilities and their families.

Access to Sailing
Their mission: Patients overcoming limitations. While Access to Sailing serves primarily hospital patients, they also provide programs for a variety of community organizations that serve the disabled and disadvantaged. And they serve many individuals

For Children

Kids Next Door
Check out this site to find a number of additional cool places to visit on the web.]

Discovery Channel School
Homework help, interesting facts and information about a number of different subjects

Kids Health – Just for you!
Articles, games, animations and resources for everything relating to you and your health.

Autism Parenting Magazine:
Up-to-date news and professional guidance for you and your child on the subject of autism.

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